My story is both unique and not unique. I was born with a rare collection of birth defects, which are under the medical umbrella known as “VACTERL”. They’re a great group of people – some of my best friends have it. We call each other at 2 am when we’re sick and need to talk to someone who “gets it”, we commiserate about crappy doctors and idiotic insurance issues, and we just get each other in a way not many others can.
Three years ago, a doctor asked if we had a club or something. I think it’s less of a club, it’s more like a family. (And I’m not just saying that because I married a VACTERL guy.)